Discussion about this post

User's avatar
NancyGoldblatt's avatar

Yes! Doctors ignorance and unwillingness to learn has taken me over 5 years to finally get an up to date accurate dx. Even as recently as Dec 2025 when I saw a Neurologist who was supposed to be familiar with Vestibular issues. He only vaguely heard of PPPD. I was not even asking for a Dx. I was asking for a referral to John Hopkins for a vestibular evaluation. I already knew from all my symptoms that I had PPPD. Maybe he thought he could get me to come back for a few more appointments. He flatly refused to refer me. Finally, I got my primary care doctor. to refer me. I no longer have BBVP thanks to 3 rounds of Physiscal Therapy at 3 different places. I do have PPPD and finally have an official diagnosis. I got a lot of VRT but my balance only got a little better. The BBVP was gone but the PPPD was still there and not diagnosed until recently.

7 more comments...

No posts

Ready for more?